Mission: Our MISSION is to accelerate research, build community and advocate to improve the lives of those affected by SCN2A-related disorders around the world. Our VISION is a world with effective treatments and cures for all SCN2A-related disorders. Our Values are URGENCY, INTEGRITY, COLLABORATION, and INCLUSION
Target demographics: Patients with rare forms of autism and epilepsy caused by a change in the SCN2A gene.
Direct beneficiaries per year: 1000 families and growing
Geographic areas served: Worldwide.
Programs: Research Grants, Advocacy, Family Event Grants, Patient Assistance Grants, Birthday Club Program and Bereavement & Crisis Program