Causes: Health, Medical Research
Mission: The mission of the Diamond Blackfan Anemia Foundation is to advance research initiatives that promote a better understanding, therapeutic strategies and a cure for this rare bone marrow failure syndrome. We are dedicated to providing patient advocacy, support and education services to individuals, families and medical professionals resulting in improvements in the diagnosis, clinical treatment and management of the disorder, while enhancing the quality of life of affected families worldwide.
Target demographics: Diamond Blackfan Anemia patients and families
Direct beneficiaries per year: support Diamond Blackfan Anemia patients, families and research.
Geographic areas served: worldwide
Programs: information, educational materials, support and advocacy. We sponsor international scientific conferences and family support meetings, as well as research grants for approved research projects. Our Facebook page is https://www. facebook. com/dbafoundation
Mission: The mission of the Diamond Blackfan Anemia Foundation is to advance research initiatives that promote a better understanding, therapeutic strategies and a cure for this rare bone marrow failure syndrome. We are dedicated to providing patient advocacy, support and education services to individuals, families and medical professionals resulting in improvements in the diagnosis, clinical treatment and management of the disorder, while enhancing the quality of life of affected families worldwide.
Target demographics: Diamond Blackfan Anemia patients and families
Direct beneficiaries per year: support Diamond Blackfan Anemia patients, families and research.
Geographic areas served: worldwide
Programs: information, educational materials, support and advocacy. We sponsor international scientific conferences and family support meetings, as well as research grants for approved research projects. Our Facebook page is https://www. facebook. com/dbafoundation
PO Box 1092, West Seneca, NY 14224
Health
West Seneca
