Mission: The Marfan Foundation save lives and improve the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes
- We pursue the most innovative research and make sure that it receives proper funding.
- We create an informed public and educated patient community to increase early diagnosis and ensure life-saving treatment.
- We provide relentless support to families, caregivers, and healthcare providers.

The Marfan Foundation is a 501(c)(3) organization, with an IRS ruling year of 1982, and donations are tax-deductible.