Causes: Health
Mission: The International FPIES Association (I-FPIES) is a non-profit organization whose mission is to improve the quality of life for patients and families affected by Food Protein-Induced Enterocolitis Syndrome (FPIES) by means of education, research, advocacy and support. The I-FPIES strives to be a worldwide leader in FPIES awareness and the issues surrounding this condition. We seek to increase awareness by providing educational resources, support services, advocacy, and the development of groundbreaking research through our partnership with the medical community.
Results: -Creation of an official FPIES ICD-10 diagnostic code (K52.21), entirely foundation run and supported by the Centers for Disease Control (CDC)-Collaborative partnerships and recognized as the official FPIES organization with AAAAI, ACAAI, NORD, AAP-Continued funding of new research studies. -Actively developing formal diagnostic and treatment guidelines of FPIES in collaboration with our Medical Advisory Board, AAAAI and an international panel of FPIES experts-Host of the first annual FPIES Education Conference in October, 2013-Expansion of awareness and education programs. In 2013, I-FPIES educated over 67,000 medical providers, to decrease the amount of time patients are lost without a diagnosis and treatment- An extensive library of resources and educational videos hosted on the foundations interactive website and social media sites-One on one supportive services-Local and region support groups hosted by FPIES-knowledgeable experts and I-FPIES board members-Hosted the first national FPIES walk in Chicago, IL-Tools for the practical management of FPIES available in printable forms, at medical provider offices and on our website-Numerous fundraising programs with detailed reports on how funds are spent-All overhead expenses from 2010-2013 provided by the I-FPIES Executive Board to ensure all donated funds are used immediately and directly to the foundations mission and goals
Target demographics: patients and families affected by Food Protein-Induced Enterocolitis Syndrome (FPIES)
Direct beneficiaries per year: over 100,000 families and supporters.
Geographic areas served: the U. S. and internationally
Programs: education, support, research and advocacy for individuals with Food Protein-Induced Enterocolitis Syndrome (FPIES) and their families. I-FPIES partners with leaders in our medical community to develop evidence-based research with a focus on early detection and new treatment options. The foundation’s research efforts are coupled with our emphasis on education and advocacy to positively impact the lives of patients and families coping with FPIES. Ultimately, the I-FPIES represents families and medical professionals united by a common focus: finding a cause and a cure for FPIES.
Mission: The International FPIES Association (I-FPIES) is a non-profit organization whose mission is to improve the quality of life for patients and families affected by Food Protein-Induced Enterocolitis Syndrome (FPIES) by means of education, research, advocacy and support. The I-FPIES strives to be a worldwide leader in FPIES awareness and the issues surrounding this condition. We seek to increase awareness by providing educational resources, support services, advocacy, and the development of groundbreaking research through our partnership with the medical community.
Results: -Creation of an official FPIES ICD-10 diagnostic code (K52.21), entirely foundation run and supported by the Centers for Disease Control (CDC)-Collaborative partnerships and recognized as the official FPIES organization with AAAAI, ACAAI, NORD, AAP-Continued funding of new research studies. -Actively developing formal diagnostic and treatment guidelines of FPIES in collaboration with our Medical Advisory Board, AAAAI and an international panel of FPIES experts-Host of the first annual FPIES Education Conference in October, 2013-Expansion of awareness and education programs. In 2013, I-FPIES educated over 67,000 medical providers, to decrease the amount of time patients are lost without a diagnosis and treatment- An extensive library of resources and educational videos hosted on the foundations interactive website and social media sites-One on one supportive services-Local and region support groups hosted by FPIES-knowledgeable experts and I-FPIES board members-Hosted the first national FPIES walk in Chicago, IL-Tools for the practical management of FPIES available in printable forms, at medical provider offices and on our website-Numerous fundraising programs with detailed reports on how funds are spent-All overhead expenses from 2010-2013 provided by the I-FPIES Executive Board to ensure all donated funds are used immediately and directly to the foundations mission and goals
Target demographics: patients and families affected by Food Protein-Induced Enterocolitis Syndrome (FPIES)
Direct beneficiaries per year: over 100,000 families and supporters.
Geographic areas served: the U. S. and internationally
Programs: education, support, research and advocacy for individuals with Food Protein-Induced Enterocolitis Syndrome (FPIES) and their families. I-FPIES partners with leaders in our medical community to develop evidence-based research with a focus on early detection and new treatment options. The foundation’s research efforts are coupled with our emphasis on education and advocacy to positively impact the lives of patients and families coping with FPIES. Ultimately, the I-FPIES represents families and medical professionals united by a common focus: finding a cause and a cure for FPIES.
contact@iaffpe.org
319 Richmond Avenue, Point Pleasant, NJ 07731
908-910-4419
Health
Point Pleasant
