Mission: Emily’s Entourage accelerates research and drug development for nonsense mutations of Cystic Fibrosis. By providing critical leadership and coordination, Emily’s Entourage drives high-impact research, cultivates multi-stakeholder collaboration, and facilitates information exchange to speed breakthroughs. Our goal is singular: to expedite life-saving treatments and a cure for those with nonsense mutations of CF who are waiting with bated and fading breath.

Results: Emily’s Entourage is an innovative 501(c)3 foundation that accelerates research for new treatments and a cure for nonsense mutations of Cystic Fibrosis, a fatal genetic disease afflicting Emily and many others. Since 2011, Emily’s Entourage has awarded millions of dollars in research grants and led worldwide efforts to drive high-impact research and drug development. The organization has been featured in the New York Times, STAT, CNN, Yahoo, AOL, People, The Philadelphia Inquirer and more.

Target demographics: find a cure for nonsense mutations of Cystic Fibrosis (CF)

Geographic areas served: Rare Disease

Programs: scientific research, scientific drug development, seed funding, grants, gene therapy