Causes: Health, Nerve, Muscle & Bone Diseases, Voluntary Health Associations & Medical Disciplines
Mission: Leads the fight to cure and treat als through global, cutting-edge research and to empower people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.
Programs: Research programs - the association funds scientific research grants to doctors/scientists to find the cause and cure of amyotrophic lateral sclerosis (als). During the year ending january 31,2015, research grants were $12,918,711, which almost doubled the amount of research grant funding from the prior year. The significant increase was made possible by the ice bucket challenge (ibc), an organic fundraising event that empowered individuals to raise awareness and funds for als by pouring ice water over their heads and challenging their friends to do the same. The association was the main benefactor of this event and received approximately $115 million in contributions as a result. Because of the success of the ibc, the association plans on further increasing research funding in ensuing years with the goal of spending over $20 million annually on research.
patient and community services - the association's national care services department, in working with the association's network of chapters, is committed to providing fully developed, managed and evaluated programs and services to people living with als, families, caregivers and professionals across the united states. Programs incorporate the perspectives from key stakeholders including people living with the disease, subject matter experts, clinical best practice, caregivers, technology, academicians and research. Activities address current needs and explore future services, creating a foundation for innovative and advanced program development based on specific community needs and knowledge advancements. Specific activities include (1) developing and implementing clinical and professional education programs based on ongoing needs assessments and best practice; (2) implementing certified care center certification and recertification programs based on nationally-recognized standards of practice, including grants to support centers of excellence; (3) developing strategies and actualizing plans to deliver care through 'other than' certified centers; (4) providing current information, resources and referrals to the communities we serve; and (5) developing and implementing comprehensive, consistent programs and services that address individual, family and caregiver needs based on 'best practice' and available resources. As a result of the success of ibc, the association was able to provide grants of approximately $8.5 million to its chapter network to help support chapter initiatives for the year ending january 31,2015.In addition, the association provided approximately $1.1 million in grants to its certified treatment centers of excellence.
public and professional education - the association's public policy department develops awareness and understanding of als and the work of the association among the general public, healthcare professionals, the scientific community and elected and other government officials. For the year ending january 31,2015, the association worked with congress to continue funding for the national als registry and the als research program at the department of defense as well as funding for als research at the national institutes of health. The association also worked with congress to help ensure access to speech generating devices and advance the development of new treatments for als by working to pass the moddern cures act.
Mission: Leads the fight to cure and treat als through global, cutting-edge research and to empower people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.
Programs: Research programs - the association funds scientific research grants to doctors/scientists to find the cause and cure of amyotrophic lateral sclerosis (als). During the year ending january 31,2015, research grants were $12,918,711, which almost doubled the amount of research grant funding from the prior year. The significant increase was made possible by the ice bucket challenge (ibc), an organic fundraising event that empowered individuals to raise awareness and funds for als by pouring ice water over their heads and challenging their friends to do the same. The association was the main benefactor of this event and received approximately $115 million in contributions as a result. Because of the success of the ibc, the association plans on further increasing research funding in ensuing years with the goal of spending over $20 million annually on research.
patient and community services - the association's national care services department, in working with the association's network of chapters, is committed to providing fully developed, managed and evaluated programs and services to people living with als, families, caregivers and professionals across the united states. Programs incorporate the perspectives from key stakeholders including people living with the disease, subject matter experts, clinical best practice, caregivers, technology, academicians and research. Activities address current needs and explore future services, creating a foundation for innovative and advanced program development based on specific community needs and knowledge advancements. Specific activities include (1) developing and implementing clinical and professional education programs based on ongoing needs assessments and best practice; (2) implementing certified care center certification and recertification programs based on nationally-recognized standards of practice, including grants to support centers of excellence; (3) developing strategies and actualizing plans to deliver care through 'other than' certified centers; (4) providing current information, resources and referrals to the communities we serve; and (5) developing and implementing comprehensive, consistent programs and services that address individual, family and caregiver needs based on 'best practice' and available resources. As a result of the success of ibc, the association was able to provide grants of approximately $8.5 million to its chapter network to help support chapter initiatives for the year ending january 31,2015.In addition, the association provided approximately $1.1 million in grants to its certified treatment centers of excellence.
public and professional education - the association's public policy department develops awareness and understanding of als and the work of the association among the general public, healthcare professionals, the scientific community and elected and other government officials. For the year ending january 31,2015, the association worked with congress to continue funding for the national als registry and the als research program at the department of defense as well as funding for als research at the national institutes of health. The association also worked with congress to help ensure access to speech generating devices and advance the development of new treatments for als by working to pass the moddern cures act.
1275 K St Nw Ste 250, Washington, DC 20005
202-407-8580
Health
Washington
