Causes: Birth Defects & Genetic Diseases, Health

Mission: Our mission is to provide information and support services to families worldwide affected by Dyskeratosis Congenita & Telomere Biology Disorders, to encourage the medical community's research in finding causes and effective treatments, and to facilitate improved diagnosis by educating medical providers.

Target demographics: patients and families with a dyskeratosis congenita & telomere biology disorder diagnosis

Direct beneficiaries per year: about 200 families from approximately 9 different countries

Geographic areas served: worldwide

Programs: on line support, monthly family chats with medical advisors, educational materials for doctors and patients, newsletters, long weekend sessions at Camp Sunshine in Maine where children attend "camp" and adults attend lectures by the world's leading authorities on Telomere Biology Disorders. Our Facebook Page is: https://www. facebook. com/teamtelomere/Our Twitter Page is: https://twitter. com/TeamTelomereInc