Mission: Our mission is to:
• Advocate for the inclusion of the Indian subcontinent in global clinical trials
• Connect rare disease patients in India & US with patient advocacy groups, research, clinical trials & international consortia
• Collaborate for public health policy development & implementation between US, India & other countries
• Bring together stakeholders of rare diseases through national & international conferences
• Facilitate cross-border research collaborations for genetic disorders

Target demographics: the rare disease community in India, US, and globally

Geographic areas served: USA, India and worldwide

Programs: 1.Patients Alliance Membership Program, 2.Research Programs, 3.Education & Outreach Programs, 4.International Diversity Rare Advocacy Initiatives, and 5.Roar4Rare